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Resources

For patients, participants, care partners, community advocates, and everyone in between, find valuable resources below.

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Health Tree Foundation

for Multiple Myeloma

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Multiple Myeloma Research Foundation

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International Myeloma Foundation

M-Power initiative

Additional Resources Provided by Facebook Live Series Guests

  1. Visit BeTheMatch: https://bethematch.org/   

  2. You can also visit www.blood.ca/stemcells  to sign up and have a swab kit mailed to you. 

Become a stem cell donor: 

Blood disorders common in Black persons:

  1. HealthTree Multiple Myeloma: https://healthtree.org/myeloma  

  2. Learn more about sickle cell disease | CDC: https://www.cdc.gov/ncbddd/sicklecell/index.html

  3. Sickle Cell 101: https://www.sc101.org/ 

Stem cell transplantation for blood cancers:

Stem Cell Transplantation-Leukemia Lymphoma Society: https://www.lls.org/leukemia/acute-myeloid-leukemia/treatment/stem-cell-transplantation    

​Patient Advocacy Groups

  1. National Sickle Cell Advocacy Network -  Sickle Cell Disease Association of America Inc.: https://www.sicklecelldisease.org/advocacy/national-sickle-cell-advocacy-network/ 

  2. Sickle Cell Consortium - Unity. Commitment. Progress. : https://sicklecellconsortium.org 

  3. Richard Armstrong myeloma patient Coaching: https://healthtree.org/myeloma/coach/app/coaches/1AniEJDL0bb9ZMnmqqfAT8AyHFh2-GxAhXAnh3drV4xY5Vf3A-COACH?fbclid=IwAR216KeryTClEwJd4ieZNah9zqDndARSbmQo2-GoqNmEVps_BAniifMNfio

Caregiving: 

Institute for family caregiving: https://www.ifcaregiving.com/about-us/  

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Research study information for Black/Hispanic/Latino(a) persons:

  1. Underserved populations - Multiple Myeloma Research Foundation: https://www.themmrf.org/multiple-myeloma/underserved-populations/   

  2. PROMISE study - Free screening for Multiple Myeloma: https://www.enroll.promisestudy.org/   

Multiple Myeloma Support Groups: 

  1. To find a local support group: https://www.myeloma.org/support-groups   

  2. Aurora, IL area support group, email: aurora@imfsupport.org  

  3. the Triangle (Raleigh-Durham) area that meets every fourth Saturday from 10am -1 2 pm Eastern in Durham NC with the option to be virtual. For more information please contact Thomas Goode via email: triangleareasg@imfsupport.org  

  4. Join the Black Myeloma Health Community Chapter: https://healthtree.org/myeloma/community/chapters/african-american-myeloma-chapter   

  5. Join the Black Myeloma Health Facebook Group: https://www.facebook.com/groups/africanamericanmyeloma 

  6. Sickle Cell Support Groups and Organizations: https://www.sparksicklecellchange.com/sickle-cell-support-groups-organizations 

  7. Leukemia Lymphoma Society Myeloma Link program: https://www.lls.org/myeloma-link

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Spanish resources: 

Las Voces de Mieloma | International Myeloma Foundation: https://www.myeloma.org/support-group/las-voces-de-mieloma

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NC Department of Health and Human Services (DHHS) Resources

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