Resources
For patients, participants, care partners, community advocates, and everyone in between, find valuable resources below.
Additional Resources Provided by Facebook Live Series Guests
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Visit BeTheMatch: https://bethematch.org/
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You can also visit www.blood.ca/stemcells to sign up and have a swab kit mailed to you.
Become a stem cell donor:
Blood disorders common in Black persons:
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HealthTree Multiple Myeloma: https://healthtree.org/myeloma
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Learn more about sickle cell disease | CDC: https://www.cdc.gov/ncbddd/sicklecell/index.html
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Sickle Cell 101: https://www.sc101.org/
Stem cell transplantation for blood cancers:
Stem Cell Transplantation-Leukemia Lymphoma Society: https://www.lls.org/leukemia/acute-myeloid-leukemia/treatment/stem-cell-transplantation
​Patient Advocacy Groups
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National Sickle Cell Advocacy Network -  Sickle Cell Disease Association of America Inc.: https://www.sicklecelldisease.org/advocacy/national-sickle-cell-advocacy-network/
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Sickle Cell Consortium - Unity. Commitment. Progress. : https://sicklecellconsortium.org
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Richard Armstrong myeloma patient Coaching: https://healthtree.org/myeloma/coach/app/coaches/1AniEJDL0bb9ZMnmqqfAT8AyHFh2-GxAhXAnh3drV4xY5Vf3A-COACH?fbclid=IwAR216KeryTClEwJd4ieZNah9zqDndARSbmQo2-GoqNmEVps_BAniifMNfio
Research study information for Black/Hispanic/Latino(a) persons:
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Underserved populations - Multiple Myeloma Research Foundation: https://www.themmrf.org/multiple-myeloma/underserved-populations/
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PROMISE study - Free screening for Multiple Myeloma: https://www.enroll.promisestudy.org/
Multiple Myeloma Support Groups:
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To find a local support group: https://www.myeloma.org/support-groups
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Aurora, IL area support group, email: aurora@imfsupport.org
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the Triangle (Raleigh-Durham) area that meets every fourth Saturday from 10am -1 2 pm Eastern in Durham NC with the option to be virtual. For more information please contact Thomas Goode via email: triangleareasg@imfsupport.org
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Join the Black Myeloma Health Community Chapter: https://healthtree.org/myeloma/community/chapters/african-american-myeloma-chapter
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Join the Black Myeloma Health Facebook Group: https://www.facebook.com/groups/africanamericanmyeloma
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Sickle Cell Support Groups and Organizations: https://www.sparksicklecellchange.com/sickle-cell-support-groups-organizations
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Leukemia Lymphoma Society Myeloma Link program: https://www.lls.org/myeloma-link
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Spanish resources:
Las Voces de Mieloma | International Myeloma Foundation: https://www.myeloma.org/support-group/las-voces-de-mieloma
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NC Department of Health and Human Services (DHHS) Resources
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We're always looking for new info to help our patients, partners, and participants. Join us in supporting our priority populations!