top of page

Resources

For patients, participants, care partners, community advocates, and everyone in between, find valuable resources below.

HealthTree_Foundation_Logo.jpg

Health Tree Foundation

for Multiple Myeloma

https://healthtree.org/myeloma
MMRF-Square_Tag_3c_Process_R.jpg

Multiple Myeloma Research Foundation

https://themmrf.org/resources/
International_Myeloma_Foundation_Logo.jpg

International Myeloma Foundation

M-Power initiative

https://mpower.myeloma.org/

Additional Resources Provided by Facebook Live Series Guests

  1. Visit BeTheMatch: https://bethematch.org/   

  2. You can also visit www.blood.ca/stemcells  to sign up and have a swab kit mailed to you. 

Become a stem cell donor: 

Blood disorders common in Black persons:

  1. HealthTree Multiple Myeloma: https://healthtree.org/myeloma  

  2. Learn more about sickle cell disease | CDC: https://www.cdc.gov/ncbddd/sicklecell/index.html

  3. Sickle Cell 101: https://www.sc101.org/ 

Stem cell transplantation for blood cancers:

Stem Cell Transplantation-Leukemia Lymphoma Society: https://www.lls.org/leukemia/acute-myeloid-leukemia/treatment/stem-cell-transplantation    

​Patient Advocacy Groups

  1. National Sickle Cell Advocacy Network -  Sickle Cell Disease Association of America Inc.: https://www.sicklecelldisease.org/advocacy/national-sickle-cell-advocacy-network/ 

  2. Sickle Cell Consortium - Unity. Commitment. Progress. : https://sicklecellconsortium.org 

  3. Richard Armstrong myeloma patient Coaching: https://healthtree.org/myeloma/coach/app/coaches/1AniEJDL0bb9ZMnmqqfAT8AyHFh2-GxAhXAnh3drV4xY5Vf3A-COACH?fbclid=IwAR216KeryTClEwJd4ieZNah9zqDndARSbmQo2-GoqNmEVps_BAniifMNfio

Caregiving: 

Institute for family caregiving: https://www.ifcaregiving.com/about-us/  

​

Research study information for Black/Hispanic/Latino(a) persons:

  1. Underserved populations - Multiple Myeloma Research Foundation: https://www.themmrf.org/multiple-myeloma/underserved-populations/   

  2. PROMISE study - Free screening for Multiple Myeloma: https://www.enroll.promisestudy.org/   

Multiple Myeloma Support Groups: 

  1. To find a local support group: https://www.myeloma.org/support-groups   

  2. Aurora, IL area support group, email: aurora@imfsupport.org  

  3. the Triangle (Raleigh-Durham) area that meets every fourth Saturday from 10am -1 2 pm Eastern in Durham NC with the option to be virtual. For more information please contact Thomas Goode via email: triangleareasg@imfsupport.org  

  4. Join the Black Myeloma Health Community Chapter: https://healthtree.org/myeloma/community/chapters/african-american-myeloma-chapter   

  5. Join the Black Myeloma Health Facebook Group: https://www.facebook.com/groups/africanamericanmyeloma 

  6. Sickle Cell Support Groups and Organizations: https://www.sparksicklecellchange.com/sickle-cell-support-groups-organizations 

  7. Leukemia Lymphoma Society Myeloma Link program: https://www.lls.org/myeloma-link

​

Spanish resources: 

Las Voces de Mieloma | International Myeloma Foundation: https://www.myeloma.org/support-group/las-voces-de-mieloma

​

NC Department of Health and Human Services (DHHS) Resources

Click on topics to view programs

Do you know about or use a resource that you don't see in our list? Tell us!

We're always looking for new info to help our patients, partners, and participants. Join us in supporting our priority populations!

Contact Us

Thanks for submitting!

bottom of page