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Our Research

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Patient and Care partner Experiences living with Multiple Myeloma (PaCE-MM)

ClinicalTrials.gov identifier: NCT05276622 

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Funded by the National Institute on Aging's Grants for Early Medical/Surgical Specialists' Transition to Aging Research (GEMSSTAR) R03 (Grant No: 1 R03 AG074030-01, PI: Shakira J. Grant). This 2-year study seeks to quantitatively (self-report surveys)  and qualitatively (semi-structured interviews) examine the longitudinal health experiences of patients with newly diagnosed multiple myeloma and their adult caregivers. We enrolled our first participant in January 2021! This study has met 90% of its enrollment target. We are so thankful to all our study participants for generously sharing their stories, time, and experiences with us! 

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We are using this data in the following ways: 

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  1. To provide feedback to participants on how their stories can shape our understanding of complex topics and guide intervention development 

  2. To create multimedia to be shared across social media platforms and at community outreach events to increase awareness about multiple myeloma  

  3. To develop presentations for the scientific community 

  4. To develop manuscripts for peer-reviewed journals 

Intervention to Address Psychosocial Needs Among Socially Disadvantaged Older Adults With Cancer

ClinicalTrials.gov identifier NCT05828654 

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Funded by the National Heart Lung and Blood Institute- Programs to Increase Diversity Among Individuals Engaged in Health-Related Research (PRIDE), this one-year study seeks to recruit patients and caregivers affected by multiple myeloma and community leaders and advocates to engage in roundtable and café style conversations about the multiple myeloma and cancer-related healthcare access challenges often faced within their communities.

 

We are then leveraging these conversations to identify community members to serve on a community advisory board whose broad roles include: 

​

  1. Bridging the gap between the research team and the community 

  2. Uplifting the voices and concerns of community members 

  3. Informing the design and implementation of community-based research/interventions 

  4. Identifying ways to optimize community benefits 

Geriatric conditions and the illness experience of adults with multiple myeloma and their care partners  

 

Influence of patient-provider relationships, communication styles and patient preferences on Black patient experiences with clinical trial participation 

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Learn more

Patient and Care partner Experiences living with Multiple Myeloma (PaCE-MM)

ClinicalTrials.gov identifier: NCT05276622 

​

Funded by the National Institute on Aging's Grants for Early Medical/Surgical Specialists' Transition to Aging Research (GEMSSTAR) R03 (Grant No: 1 R03 AG074030-01, PI: Shakira J. Grant). This 2-year study seeks to quantitatively (self-report surveys)  and qualitatively (semi-structured interviews) examine the longitudinal health experiences of patients with newly diagnosed multiple myeloma and their adult caregivers. We enrolled our first participant in January 2021! This study has met 90% of its enrollment target. We are so thankful to all our study participants for generously sharing their stories, time, and experiences with us! 

​

We are using this data in the following ways: 

​

  1. To provide feedback to participants on how their stories can shape our understanding of complex topics and guide intervention development 

  2. To create multimedia to be shared across social media platforms and at community outreach events to increase awareness about multiple myeloma  

  3. To develop presentations for the scientific community 

  4. To develop manuscripts for peer-reviewed journals 

+.png
-.png
+.png
-.png

Intervention to Address Psychosocial Needs Among Socially Disadvantaged Older Adults With Cancer

ClinicalTrials.gov identifier NCT05828654 

​

Funded by the National Heart Lung and Blood Institute- Programs to Increase Diversity Among Individuals Engaged in Health-Related Research (PRIDE), this one-year study seeks to recruit patients and caregivers affected by multiple myeloma and community leaders and advocates to engage in roundtable and café style conversations about the multiple myeloma and cancer-related healthcare access challenges often faced within their communities.

 

We are then leveraging these conversations to identify community members to serve on a community advisory board whose broad roles include: 

​

  1. Bridging the gap between the research team and the community 

  2. Uplifting the voices and concerns of community members 

  3. Informing the design and implementation of community-based research/interventions 

  4. Identifying ways to optimize community benefits 

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